Manual Special Kids

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Behavior issues can increase the risk of problems at school. As a parent, you will need to be flexible, creative, and patient. Developmental disabilities can change your visions of the future and provide immediate difficulties in caring for and educating your child. Diagnoses like autism, Down syndrome , and intellectual disabilities often cause children to be removed from the mainstream.

They require specialized learning strategies to meet their potential and avoid self-esteem problems and behavioral difficulties.

Special Kids Connect | Resources & Awareness of All Disabilities

Parents of learning-challenged kids need to be persistent. This includes working with your child at home as well as teachers and schools to ensure they get all the help they need. Again, every child will be different, yet these can leave your family dealing with a roller coaster of mood swings, crises, and defiance.

It's important that parents find the right professionals to help. Although every special needs child is different and every family is unique, there are some common concerns that link parents. These include getting appropriate care and promoting acceptance in the extended family, school, and community.

For some, planning for an uncertain future may be necessary. You will also find yourself adjusting routines and expectations, sometimes quite often. Out of necessity, parents of children with special needs are often more flexible, compassionate, stubborn, and resilient than other parents. While it may not be something you had hoped for or expected, it is important for your child that you try to do your best. You can take comfort in the fact that you're not alone, so feel comfortable reaching out for support.

Get diet and wellness tips to help your kids stay healthy and happy. Special Kids relies on the support of the community, volunteers and grant funding to maintain their unique services. Your Name required. Your Email required. Your Message. Every Child Is Special. I have never met anyone with all of these same challenges as my kid but I have a strong network within each separate diagnosis. We have made wonderful friends and have found—and I hope provided—a great deal of support within each of these.

We are placed in a position of caring for others nearly constantly. However, you still need and deserve to be cared for. That entails asking friends or family to bring a meal by every now and then, or going for a pedicure, or a date night, or whatever else you enjoy doing. Whatever makes you feel special and taken care of, take the time to enjoy it, you are worth it! No one is perfect. We all make mistakes. We can wallow in our goof-ups or move on!

Maybe your kiddo had a tough day at school and just needed the night off. Who knows? You may not leap buildings in a single bound or run faster than a speeding bullet but you are a superhero none the less.

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Everyday, you manage situations that a regular parent would think are impossible. You stretch tight muscles, remember pills, inject and infuse medicine. You hold hysterical children during horrendous medical procedures. You deal with tantrums and melt downs. And most often manage not to have a tantrum or melt down yourself.

Living with Miller Syndrome (Less Than 40 Known Cases)

You encourage your child to do things doctors told you they would never do but you never gave up hope. You are a therapist, nurse, doctor, friend and confidante. You are no regular parent. Since then, I have grown, I have learned and I have come to understand. For children, therapy is play and play is therapy.

For Parents

What I mean is that the best therapists find ways to make my son engage in challenging activities that he otherwise would have balked at, by making it a game that he wanted to play. We took a page from their book and did the same at home. Yes this is different from number five.

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After discharge from therapy, we sought extra curricular activities for my son that would offer therapeutic benefits. He played sled hockey, runs on a track team, learned to shoot archery and takes swim lessons.

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All of this is therapy. Win, Win and Win! You will have to make painful decisions that hurt your heart and leave you questioning everything you thought you knew or understood. Know that you are doing your best, remember number three. I am guilty of agonizing over these types of decisions, they can become really overwhelming to me. Talk about your conundrum with others who get it and trust yourself to make the best decision.

Families Helping Families

Easier said than done, but worth a try! Many of the choices you are forced to make have no right answer, just the lesser of the hard and painful wrong choices. Yes, you will screw things up sometimes despite the very best of intentions. No amount of torturing yourself will make you feel better, nor will it help you to make better choices.

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Remember many of the toughest decisions have no right answer.